Thursday, January 24, 2013: update to baby Audrina’s condition Yesterday, after a 3 ½ month stay, Audrina left the hospital through an exterior heart shield that she will wear moving forward to protect her heart together she grows. In a couple of years, Audrina will have surgery to ar a an ext permanent safety shield inside her chest wall. She will be followed regularly through Dr. Carrie Altman and the cardiology team in ~ Texas Children"s Hospital. During her stay, baby Audrina to be cared for by 80+ physicians, nurses, occupational and also physical therapists and many much more clinical staff. To watch updated image of Audrina, visit this photograph gallery.
You are watching: Born with heart outside of body
Ectopia cordis is a rare problem where a baby’s heart is located either partly or totally outside the chest. only 8 the end of 1 million babies room born v ectopia cordis, and 90% of this babies room either stillborn or die within the very first 3 job of life. Today, ns am happy come share the Audrina Cardenas, that was born v this very rare diagnosis has defied the odds and also is doing really well. She is currently 5 weeks old after receiving lifesaving heart surgery at Texas children Heart center when she was born. Ns personally have actually only watched this condition a couple of times in my career and these are always really tricky cases. In fact, countless of this babies do not survive. Audrina’s condition was initially found during one ultrasound 16 weeks into her mother’s pregnancy. Her mother was offered 3 options: to terminate the pregnancy, opt because that comfort care, or selected to have actually her baby undergo very risky surgical procedure after birth.
She decided surgery and was referred to Texas children Fetal facility from her house in Midland, Texas. This risky procedure on such an uncommon condition required specialists from a range of care teams consisting of cardiovascular surgery, plastic surgery, basic surgery and also others. However here at Texas children’s Hospital we have actually the full spectrum of clinical specialists to give patients choose Audrina the finest chance in ~ making it. If Audrina and also her mother hadn’t been described a facility like ours, she wouldn’t be below today. Although she future prognosis is quiet uncertain, Audrina is currently thriving and making progress each day. She will proceed to be closely followed by a multidisciplinary team and will require devoted care by a pediatric cardiologist for the remainder of her life.
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But Audrina is a true fighter and also we are hopeful that she will continue to progress. Ns am additionally hopeful that Audrina’s situation marks the start or our capacity to care for much more children diagnosed v ectopia cordis in the future.